This past Wednesday was Kyrie's Urology appointment down at St. Christopher's Children's Hospital. Luke was able to get out of his rotations for the day and come with Kyrie and I; thank goodness. I really have mixed feelings about the whole appointment and I hope the doctor knows what she's doing. About 2 weeks ago we got a call from Kyrie's Pediatrician saying that her most recent bladder infection wasn't gone and that there were few medicines we could use to kill what she did have. That was the day she started crying again that it hurt when she went to the bathroom. The next day I called the Ped. back and said she really needed something and we couldn't wait. After the Ped. consulted with a Urologist they put her on Cipro, which they normally don't give to little kids. She is on the last day of that and she is doing much better.
We went to the Urologist appointment with a bunch of paper work from the Pediatrician which included the 10 bladder infections she has had in the last 12 months as well as what they treated them with. We were in the appointment for at least an hour and a half but I don't feel completely put at ease. I know that with every new doctor you have to start at square one but this is a specialist. First of all, they know from her VCUG and renal ultrasound she doesn't empty her bladder all the way when she pees. That is the perfect environment for things to grow. They think that her bowels are to full all the time and that the pressure on the bladder is making the problem worse. The treatment for the next 6-8 weeks is taking Miralax daily and they are also prescribing her a medicine that will keep her from getting any more infections. I wish they would have given her that a while ago but I don't think a Pediatrician gives that out much. I have a diary that I have to fill out every time she goes to the bathroom and her diet is being somewhat restricted. She can no longer have, soda, chocolate, caffeine. Oh wait, she doesn't have those things anyway so it won't make a difference. We go back the first part of October and I hope by then this works and we can put this all behind us. It has been a long road. One that we don't want a repeat of.
Now for other updates. Luke has started his Psyciatric rotation and has seen some interesting things. His hours are a tiny bit better which is good since he just got a cold which is making him a little more tired.
I am tired a lot due to the kids waking up before 6:00 am lately. But besides that I am good. What parent isn't tired anyway?
Kyrie starts preschool this year to get her ready for the year round Kindergarten they have here. She is very excited and I hope she likes it.
Ryan is getting to be so independent. He tries to do everything by himself and loves to bug his sister. The fighting has gotten bad enough that I have contemplated puting them in separt rooms. They can be cute together but I need 2 of everything to make them happy. Ryan LOVES vehicles and will play with his cars and trucks for hours. He has the cutest little personality and can really be a ham.
5 comments:
I understand your frustration. I have spent many months... going to different doctors to get some of Josh's diagnosis. It totally sucks. There is no other way to put it. I really hope that this does something, but again... I know how it goes when it doesn't work out. For your guys' sake though... I hope things get better.
I'm sorry to hear that it wasn't a quick fix. What a hard thing for not only Kyrie, but for all of you. It's hard to function properly when something is wrong with our kids. I hope that everything will clear up soon and that Kyrie will be done with this sort of thing for the rest of her life. Good luck!
I hope you guys can get it figured out! Cutie kids :)
Wow. I had no idea you had such struggles with Kyrie. I am so sorry. And I am really glad you got her to a specialist. I hope they are going to help.
I was thinking about the seperate room thing. If you have the space, you may want to do it. They are getting old enough they should be seperated soon. But good luck with all the headaches I know are coming.
I am going to miss you. :(
Well, that's not anything near what I was expecting. I hope it works out and that this problem can be fixed. That poor girl has gone through more than her share...along with the parents that have to care for her!
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